Description
He once wished for a completely different face. Today, Jono says he loves it.
In this episode of LADbible Stories’ Honesty Box, he answers your questions about living with Treacher Collins syndrome, growing up with a visible difference and learning to accept himself.
From bullying and online abuse to sex, relationships and the possibility of having children, Jono shares the experiences that shaped him. He opens up about his mental health, the love his mum gave him and why he chose not to have cosmetic surgery to change his appearance.
An honest conversation about facial difference, confidence and self-love - and finding a kinder voice inside your own head.
Chapters:
00:00 Introduction
00:37 What is Treacher Collins?
01:13 Jono, how common is Treacher Collins?
01:22 At what age did you realise you were different?
02:46 What's the worst thing that someone has said to you?
04:03 What did your mum see in you that you struggled to see in yourself?
05:21 If you could, would you change the way you look?
07:13 How have you found navigating your sex life?
08:34 Is it rude to ask you about your appearance?
09:21 Are you in pain?
10:24 Have you ever felt suicidal?
13:27 How did it feel to be stared at?
14:31 Will you have children?
15:25 What do you genuinely love about your appearance?
16:14 What was it like meeting someone with a facial difference for the first time?
17:48 What misconceptions do people have about you?
18:25 What do you think of the word 'disability'?
19:05 What would you rather people said?
19:33 What advice do you have for young people growing up with the same condition?
20:59 Have you ever struggled to leave the house?
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