A Mom with Butterfly Skin (Open Wounds Cover Her Body)

Special Books by Special Kids Video 2 months ago

Description

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Lindsey lives with Recessive Dystrophic Epidermolysis Bullosa, a rare disorder that leaves her body covered in painful open wounds. After a traumatic childhood where she often felt like a burden and wondered if her family would be better off without her, Lindsey is now a single mother herself. She hopes to end the generational trauma she inherited while also managing a painful condition that has severely limited her physically.

Lindsey wants people to understand that although Epidermolysis Bullosa affects her body, it does not define who she is as a mother or as a person.