She's Nonverbal but Loves Making Friends (Pfeiffer Syndrome)
Video | 2 months ago
Help us continue telling stories like this at Patreon.com/SBSK Nithya was born with Pfeiffer syndrome type 2, a rare genetic condition that affects the development of the skull and face. Although she is nonverbal, she loves forming bonds with the people aro...
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Autistic Twins Who Are Gentle Giants
Video | 2 months ago
Help us continue telling stories like this at Patreon.com/SBSK Lucas and Nick are autistic (Level 3) twin brothers known by their family as "The Gentle Giants." At around 6'7" each, they attract attention everywhere they go, and people often stop and stare....
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I Am Not a Saint
Video | 2 months ago
Anybody can do what I do. Here is how. You can support SBSK and help us keep filming these videos at https://www.patreon.com/c/SBSK
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She Has Childhood Alzheimer’s and Down Syndrome
Video | 2 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Lottie was diagnosed with Down syndrome before she was born. Then at 4 years old, she was diagnosed with Sanfilippo syndrome, a rare genetic disorder often referred to as ...
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An Autistic Teen Born Without Eyes
Podcast | 3 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Christian was born with an extraordinarily rare craniofacial condition caused by a cleft palate so severe that only around 50 similar cases have been documented in medical...
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She Spent Her First Year in the Hospital (Born at 1 Pound)
Review | 3 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Kamerie was born at just 28 weeks old weighing only 1 pound and 5 ounces. She spent over a year in the NICU and needed life-saving resuscitation nearly every day. Eventual...
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The Boy Who Must Wear a Helmet to Survive (Sinus Pericranii)
Video | 3 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Milo is diagnosed with Sinus Pericranii, a rare cranial venous anomaly that makes any significant impact to his head potentially fatal. To protect himself, Milo wears a he...
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A Baby Permanently Disabled by Abuse
Video | 4 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Bud and his sister Roro were born into the same biological family, but their lives took very different paths. After witnessing unsafe living conditions, state agencies rem...
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A Mom with Butterfly Skin (Open Wounds Cover Her Body)
Video | 4 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Lindsey lives with Recessive Dystrophic Epidermolysis Bullosa, a rare disorder that leaves her body covered in painful open wounds. After a traumatic childhood where she o...
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A 30 Inch Tall Teenager Who's Looking for Love
Video | 4 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Kamarrion is a 30 inch tall teenager living with brittle bone disease. Like many teenagers his age, he dreams of one day having a girlfriend, going on dates, and finding s...
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Rest in Peace John Hudson
Podcast | 5 months ago
Help end EB at https://give.ebresearch.org/campaign/sbsk-x-john-hudson/c584601 John Hudson Obituary: https://www.bedellpizzo.com/obituaries/john-hudson-dilgen You can watch John Hudson's final interview from December 2025 at https://youtu.be/WanvuFtrlUI?si=...
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Living with 3 Rare Disabilities (Including 2 Genetic Deletions)
Stream | 5 months ago
Support SBSK and help us continue sharing stories like this: https://patreon.com/sbsk Camden was diagnosed in utero with agenesis of the corpus callosum and two rare genetic deletions. After these diagnoses, doctors recommended termination. His parents chos...
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